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Anales del Sistema Sanitario de Navarra
versão impressa ISSN 1137-6627
Resumo
GRAU, C. e FERNANDEZ HAWRYLAK, M.. Family and chronic paediatric illness. Anales Sis San Navarra [online]. 2010, vol.33, n.2, pp.203-212. ISSN 1137-6627.
Pediatric illnesses are always a family problem. Hospitalization, treatments and their long term consequences constitute a challenge for the family. In this paper, we describe the structural, procedural and emotional alterations that affect the family dynamic. We argue that the child should be treated within the family context and propose a multi-dimensional intervention model centered on the familys singularities and specific needs, the support available in their environment, the development of capacities and resilience, and also the organization of user-centered services that are coordinated with all the services provided by the community.
Palavras-chave : Paediatric chronic disease; Family; Resilience; Family counselling.