Index de Enfermería
versión impresa ISSN 1132-1296
SOLANES, Ares et al. Neurofibromatosis type 2: Life story of Lidia. Index Enferm [online]. 2012, vol.21, n.1-2, pp.77-81. ISSN 1132-1296. http://dx.doi.org/10.4321/S1132-12962012000100017.
Neurofibromatosis type 2 (NF2) is a minority hereditary disease characterized by the development of multiple tumours, especially bilateral vestibular schwannomas, in young adults. Treatments with surgery or radiotherapy are performed to delay hearing loss. The prognosis is complicated and patients face the deterioration of their quality of life. A qualitative study through our key subject's life allows us to explore and understand her experience, as a NF2 sufferer, to identify her needs and to learn about her adaptive measures.
Palabras clave : Neurofibromatosis type 2; Life story; Qualitative research; Nursing.