Resumo

RUBIO ACUNA, Miriam. Understanding the experience and needs to be the primary caregiver of a family member with Alzheimer's disease: case study. Gerokomos [online]. 2014, vol.25, n.3, pp.98-102. ISSN 1134-928X.  https://dx.doi.org/10.4321/S1134-928X2014000300003.

Alzheimer's disease (AD) affects 8% of the population aged 65 years and 30% of the population over 80 years, with a high economic, social and human cost. Purpose: To provide comprehensive knowledge about the experience of being a caregiver for a family member with AD. Methodology: qualitative study of phenomenological approach. Were interviewed in depth to a caregiver of a relative with AD. For the data analysis method was used Colaizzi. Results: We unveiled the following units of meaning: strong experience due to bonding, feeling violated and emergence of contradictory feelings, sense of loss of a loved one, difficult decision to institutionalization, search for meaning beyond the disease and feel about the situation. Conclusion: This case study aims to provide comprehensive knowledge of the care experience.

Palavras-chave : Alzheimer's disease; primary caregiver; case study.

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