Abstract

VIDAL, Fernando. Towards a phenomenology of Locked-in Syndrome. Rev. Asoc. Esp. Neuropsiq. [online]. 2018, vol.38, n.133, pp.45-73. ISSN 2340-2733.  https://dx.doi.org/10.4321/s0211-57352018000100003.

Little is known about how individuals with Locked-in Syndrome (LIS) experience their situation. There is still no phenomenology of LIS, in the sense of a description of the locked-in persons’ subjective experience. Research into quality of life, as well as other questionnaire-based investigations, provide important material. Arguably the best sources would be first-person narratives; but they have not yet been studied systematically. This article discusses existing materials relevant to a phenomenology of LIS and suggests some directions for undertaking it methodically.

Keywords : Locked-in Syndrome (LIS); Phenomenology; Illness Narratives; Amyotrophic Lateral Sclerosis (ALS).

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