Abstract

APARICIO LOPEZ, Cristina et al. Design of a quality of life questionnaire in Spanish for children with chronic renal disease. Nefrología (Madr.) [online]. 2010, vol.30, n.2, pp.168-176. ISSN 1989-2284.

Treatment of chronic renal disease in childhood must include assessment of social and psychological aspects involved in the perceived quality of life of the child and its family. Our objective has been to design a specific tool in Spanish for measuring quality of life in pediatric patients with chronic renal disease, since there is not a validated test for children at the moment. Results: We designed a specific questionnaire for renal disease in children based on the test of quality of life for adults with renal disease (KDQOL-SFTM) and on the test of quality of life for children with epilepsy (CAVE) adapting them to children with renal disease, denominating TECAVNER (Test of Quality of Life in Children with Renal Disease). Reliability of this questionnaire determined by alfa Cronbach coefficient was 0,92. Limitations: questionnaire determined by Test-retest reliability and construct validity were not conducted. In conclusion, this is a first approach for design a specific health related quality of life test in Spanish for children with chronic renal disease.

Keywords : Health-related quality of life; Children; Specific disease questionnaire; Renal disease.

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