Abstract

CARRASCO ACOSTA, Mª del Carmen  and  JIMENEZ DE MADARIAGA, Celeste. Perceptions of fibromyalgia: patient self-care strategies versus the lack of care. Index Enferm [online]. 2015, vol.24, n.1-2, pp.44-48. ISSN 1699-5988.  https://dx.doi.org/10.4321/S1132-12962015000100010.

Fibromyalgia disrupts patients' daily lives and their relationships with family and their close social environment. This study explores patients' experience from the Phenomenology of Perception Theory and from the Health-Disease-Care-Self care Model. The aim is to explore perception sand meanings that have the Fibromyalgia sick during his life journey in the disease process-disease-care and self-care strategies to know they are making to improve the quality of their lives. The units of observation and analysis were patients diagnosed with Fibromyalgia belonging to an association of Fibromyalgia and Myalgic Encephalitis, located in Aljaraque (Huelva). The findings show that from biomedical care perspective, the historical process of individual and collective experience of pain is not considered, excluding also its symbolic and cultural dimension. This fact produces a fraction al care which his perceived by the protagonists as "not satisfying".

Keywords : Nursing; Self-care; Care Anthropology; Fibromyalgia.