Abstract

BUCHELLI AGUIRRE, Erika Emilcen. Facing life with a craniofacial congenital malformation. Index Enferm [online]. 2017, vol.26, n.1-2, pp.82-86. ISSN 1699-5988.

Craniofacial congenital malformations may have important effects on those individuals who are born with them; however, there is a short range of studies aimed to query their impact. The objective defined for this study is to know how and in what extension is the impact of living with a craniofacial congenital malformation. In order to reach this objective it was carried out a biographical account following methodology of Amezcua y Hueso and Hoyos. Data analysis allowed the identification of categories such as: lack of information by health professionals about syndrome and malformation, the way society stigmatizes and creates obstacles, parents' reaction towards birth of a child with malformation and understanding of experience as a significant one. In his account the participant shows how internal sources allow for experience transformation and new signification despite imposed challenges by context and society.

Keywords : Congenital abnormalities; Congenital malformation; Congenital microtia; Goldenhar syndrome.