Abstract

BERMUDO FUENMAYOR, Sara et al. Therapeutic communication in Amyotrophic Lateral Sclerosis: case management at the end of life. Index Enferm [online]. 2021, vol.30, n.1-2, pp.55-58.  Epub Apr 25, 2022. ISSN 1699-5988.

Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease characterized by rapid and fatal evolution, producing a great emotional impact on both the patient and their family. The role of the Nurse Case Manager in the monitoring, evaluation, and control of the patient and their family from the diagnosis of ALS, and as the main expert reference in care, positions her as a point of reference for the union of the multidisciplinary team and the family unit. Their role within the interdisciplinary team helps to improve the assistance that the informal caregiver provides, avoiding the overload of the caregiver role, increasing patient safety, and therefore the quality of life for both, thus also improving communication and information and family satisfaction. In practice, it is difficult to maintain a continuity of comprehensive care throughout the disease process, from diagnosis to the last days.

Keywords : Nursing; Amyotrophic Lateral Sclerosis; Therapeutic Relationship; Palliative Care; Primary Care; Communication.