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Nutrición Hospitalaria
versión On-line ISSN 1699-5198versión impresa ISSN 0212-1611
Resumen
FERNANDEZ MIAJA, María et al. Analysis of health-related quality life in celiac patients. Nutr. Hosp. [online]. 2021, vol.38, n.4, pp.715-721. Epub 27-Sep-2021. ISSN 1699-5198. https://dx.doi.org/10.20960/nh.03538.
Introduction:
the treatment of celiac disease is gluten-free diet for life. This can impact the quality of life (QoL) of patients.
Objectives:
the objective was to evaluate the QoL and the factors with an impact on QoL in a sample of celiac children.
Methods and materials:
a descriptive observational study. QoL was evaluated using the Celiac Disease Dux Questionnaire (CDDUX). Adherence to gluten-free diet was assessed with the Celiac Dietary Adherence Test (CDAT) and the presence of gluten immunogenic peptides (GIP) in the feces. Sociodemographic and clinical data were collected, and an ad-hoc survey was developed.
Results:
eighty patients were included. Median CDDUX score was 44.04 points (QoL: "neutral"). Subscale scores included: "communication", 58.3 points ("neutral"); "having CD", 25 points ("Bad"); and "diet", 41.6 points ("neutral"). QoL was worse among patients with celiac relatives (the result of the survey was "bad" vs. "neutral" with p = 0.02) and among those who found unsatisfactory the somatosensory characteristics and the price of gluten-free food (the result of the survey was "bad" vs. "neutral" with p = 0.02). Those who found unsatisfactory the texture of these food reported a worse QoL ("bad" vs. "neutral", p = 0.009). Those who reported eating outside the home as a transgression inducer reported a "bad" QoL; those who did not, reported a "neutral" QoL (p = 0.03).
Conclusions:
celiac patients report a "neutral" QoL. A poorer QoL was related to having celiac relatives, finding gluten-free food unsatisfactory, and considering eating outside the home as an inducer.
Palabras clave : Quality of life; Adherence; CDDUX (Celiac Disease Dux).