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Anales del Sistema Sanitario de Navarra
versão impressa ISSN 1137-6627
Resumo
ALDAMIZ-ECHEVARRIA, L.; PRIETO, J. A.; COUCE, M. L. e GONZALEZ LAMUNO, D.. On-line resources in dealing with rare diseases. Anales Sis San Navarra [online]. 2008, vol.31, suppl.2, pp.145-152. ISSN 1137-6627.
The increase in scientific knowledge and the need for its transmission to health professionals and patients has resulted in the creation of websites as a useful tool. In low prevalence diseases, such as rare diseases (RDs), sites are being created by scientific societies, institutions and patients. This section reviews the most important websites dealing with RDs both nationally and internationally.
Palavras-chave : Websites; Rare diseases; Computer science.