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Enfermería Nefrológica

versão On-line ISSN 2255-3517versão impressa ISSN 2254-2884

Resumo

ALCARAZ-MORENO, Noemí; VAZQUEZ-ESPINOZA, José Antonio; PINEDA-ZAMORA, María Teresa  e  RAMOS-SANCHEZ, Francisco Javier. The trajectory of patient care in hemodialysis: From the unexpected news to the final outcome. Enferm Nefrol [online]. 2019, vol.22, n.3, pp.308-316.  Epub 23-Dez-2019. ISSN 2255-3517.  https://dx.doi.org/10.4321/s2254-28842019000300010.

Introduction

Complications of chronic kidney disease and treatment degenerate the patient’s state of health, conditioning independence in health self-care. Situation that triggers the need for care of another person. From the moment that the patient and the family receive the diagnosis and the news of the treatment, they carry out a process that will lead them to face the new situation that is presented.

Objectives

To describe the caregivers’ experience in hemodialysis patients, to generate strategies and nursing interventions derived from their support needs.

Material and Method

Qualitative research, using grounded theory, the collection of information was carried out through an in-depth semi-structured interview and participant observation.

Results

The care path experienced by the primary caregiver of the hemodialysis patient goes through three stages: the first stage, after the unexpected news becomes a caregiver and experiences a series of changes that involve the personal, family and social sphere. An intermediate stage, in which there is a process of adaptation and gives meaning to the care provided to your family member; and a final stage, where different types of grief are faced.

Conclusions

Accepting the situation, assuming the role of caregivers, time and belief in a superior being were the resources from which they obtained the got the strength to face the processes that they will go through in each of the stages of the care path.

Palavras-chave : primary caregiver; nurse; hemodialysis.

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