Resumo

CRUZ-ESCOBOSA, María Isabel; SORROCHE-RODRIGUEZ, Juan Francisco  e  PRADOS-GARCIA, Francisco. Perception and expectations of mothers with seriously disable children on received sanitary attention. Index Enferm [online]. 2006, vol.15, n.54, pp.15-19. ISSN 1699-5988.

Objectives: (1) To know the perception which they have the main nursemaids of children with seriously disabilities about the attention received within the Public System Sanitary of Andalusia, identifying strong and weak points. (2) To as much identify proposals of improvement for the integral attention of the children, as of its nursemaids. Methodology: qualitative study by means of Focal Group with parents of child diagnosed of chronic pathologies that generate great dependency with ages between 4 and 12 years. Results: The repercussions of the disease of their children in their families and them supposed a total impact. They express a lack of effective familiar support and time cared for himself. They perceive a treatment and a good able attention on the part of some of the professionals of specialized Attention. In the Centre of Health they see as very positive the treatment of the professionals, the accessibility, facilities that find before any problem that arises to them and now the Plan of attention to great disabilities caregivers. Conclusions: It is necessary to consider the vision of the mothers in the treatment of the disease of his children. To assume it by the professionals as valuable information is going to produce an improvement in the lent quality. They value that them report with clarity and not technically. Any intervention of the system Partner-toilet must include the patient, to the informal caregiver and the family increase the benefits offered, specially the rehabilitate treatment and facilitate resources to diminish the economic and emotional overload.