Resumo

BAENA PINAZO, Francisca  e  LOPEZ SUAREZ, Raquel. Chordoma of Clivus: live in no man's land. Experiencies of a nurse and family caregiver. Index Enferm [online]. 2018, vol.27, n.4, pp.234-238.  Epub 20-Jan-2020. ISSN 1699-5988.

Chordomas of Clivus are rare, typically slow-growing, locally aggressive tumors that originate from remnants of the notochord. They are benign neoplasms with a high rate of recurrence and mortality. For medical teams represent a great challenge, not only for the treatment of the disease itself, but also for the number of specialties that must be coordinated for patient care. Among them, experts in palliative care should be present. We must help the patient and the family to feel better, to prevent, to treat the symptoms and side effects of the disease and treatments. We must also address the emotional, social, practical and spiritual problems that the disease poses. In short, we must try to improve their quality of life. But reality has been different, since patients aresometimesreferred to palliative care late. With this biographical report, it is intended to know the experiences of a nurse-caregiver of his mother affected by this type of tumor, the obstacles with which he is to access quality palliative care and the psychological and emotional wearthat his care entailed.

Palavras-chave : Clivus tumor; Non-cancer tumor; Palliative care.