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Enfermería Global

versão On-line ISSN 1695-6141

Resumo

MARTINEZ-TRAVER, Laura  e  CERVERA GASCH, Águeda. Quality of life in institutionalized adults with cerebral palsy. Enferm. glob. [online]. 2020, vol.19, n.57, pp.243-262.  Epub 16-Mar-2020. ISSN 1695-6141.  https://dx.doi.org/eglobal.19.1.349901.

Introduction

Cerebral palsy is considered a group of permanent developmental disorders that cause limitations in daily activity. One of the complications in people with cerebral palsy is the decrease in quality of life.

Objective

The objective of this study is to know the quality of life for institutionalized adults with infantile cerebral palsy and to know if there are differences in the quality of life index based on functional characteristics.

Method

Cross-sectional descriptive observational study in institutionalized adults with infantile cerebral palsy performed in the APCA and ASPROPACE centers between March and September 2017. The San Martín questionnaire was administered to measure the Quality of Life, Gross motor classification system, Barthel questionnaire, Scale CFCS to measure motor function, physical dependence, level of communication and relate them with sociodemographic and clinical variables. The selection of the participants was carried out by random stratified sampling. It was approved by the centers' addresses.

Results

Participants were 39 people with an average age of 32.54 years. The overall average score of the San Martin questionnaire was 102.97 points. The most affected dimensions were material well-being, personal development and social incluison. No statistical significance was obtained in the overall score of the questionnaire based on the secondary variables.

Conclusions

The results of this study have shown that the quality of life of adults with cerebral palsy in the subjects studied is good.

Palavras-chave : Cerebral palsy; Quality of life; Motor skills; Activities of daily living; Communication.

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