Abstract

CUESTA-BENJUMEA, Carmen de la. "A life that is not normal": the context of family care in dementia. Index Enferm [online]. 2011, vol.20, n.1-2, pp.41-45. ISSN 1699-5988.  https://dx.doi.org/10.4321/S1132-12962011000100009.

The largest group of caregivers are women who live in situation of vulnerability and have little formal support. While research literature emphasises the burden of care and the relief of that burden, there are few studies that describe the context where this care takes place. The purpose of this qualitative study is to describe the context of dementia family care giving. For participants their life is not normal. Having a restricted life and without a proper life are the categories that describe care givers context. To this kind of life they are accustomed.Nurses can improve this situation. They can advice caregivers to reserve parcels of their persona life. Nurses are also authorized voices to promote and sensitize equitable family care practices.

Keywords : Dementia care; Care givers; Family care; Qualitative research.