Abstract

MERCHAN BAEZA, José Antonio. "Nobody is prepared for this": the account of the father of a child with acquired brain injury. Index Enferm [online]. 2013, vol.22, n.1-2, pp.93-97. ISSN 1699-5988.  https://dx.doi.org/10.4321/S1132-12962013000100020.

Pedro is the father of a 5 years old boy with acquired brain injury, which was developed at birth, as result of a heart congenital malformation. In this account he talks about his son´s disability as well as complications, needs, adaptations and changes that such situation entails. He tells us also about the different therapies that Luis is carrying out, treatment received and the different surgical interventions to which he has been submitted. In turn, he analyzes from the experience both the parent´s involvement in their children´s intervention as the promotion of it by the therapist. In closing, he takes a look to his son´s evolution in these last 5 years, his current situation and his view about his future.

Keywords : Brain injuries; Leukomalacia periventricular; Parents; Treatment.