Abstract

IGUAL SEGURA, Judit. Parenting experience of a girl with Down syndrome. Index Enferm [online]. 2019, vol.28, n.3, pp.134-138.  Epub July 13, 2020. ISSN 1699-5988.

The birth of a child with Down Syndrome (DS) is a situation that is accompanied by a great family and social impact. There are still negative attitudes and ignorance today. The aim of this study is to present the experience of Josefa, a 72 year old woman, in the raising of her daughter with SD María. For this, following a qualitative methodology by conducting a semi-structured interview, different aspects of Josefa's story are analyzed, such as the communication of the diagnosis, the confrontation of the news, changes in lifestyle, family, satisfaction and enrichment, problems during childhood, current concerns and vision of the future. By making this type of experience known, it helps to reduce these negative attitudes, thus facilitating the integration of people with DS in our society.

Keywords : Down syndrome; Parenting experience; Upbringing; Qualitative Reserche.