Objectives:

To assess the experience of chronically ill patient’s non-professional caregivers.

Methodology:

A descriptive study was carried out in a chronically ill patients’ hospital. The questionnaire for evaluating the experience of the non-professional caregiver of the chronic patient (IEXPAC© 2018-Caregivers) was applied to a randomly selected sample of non-professional caregivers of discharged patients.

Results:

90 non-professional caregivers were enrolled. The mean (± standard deviation) overall score of the questionnaire was 3.8 (± 1.4) points, over 5. The items with suboptimal scores were those referring to the help received for training through the Internet and the encouragement to talk to other caregivers.

Conclusion:

The IEXPAC© 2018-Caregivers survey is a reliable tool that allows us to identify areas for improvement and perceived needs from which to develop specific and defined actions aimed at improving the experience of non-professional caregivers of patients with chronic diseases.

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