<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>0211-5735</journal-id>
<journal-title><![CDATA[Revista de la Asociación Española de Neuropsiquiatría]]></journal-title>
<abbrev-journal-title><![CDATA[Rev. Asoc. Esp. Neuropsiq.]]></abbrev-journal-title>
<issn>0211-5735</issn>
<publisher>
<publisher-name><![CDATA[Asociación Española de Neuropsiquiatría]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S0211-57352018000100045</article-id>
<article-id pub-id-type="doi">10.4321/s0211-57352018000100003</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[Hacia una fenomenología del síndrome de cautiverio]]></article-title>
<article-title xml:lang="en"><![CDATA[Towards a phenomenology of Locked-in Syndrome]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Vidal]]></surname>
<given-names><![CDATA[Fernando]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Institució Catalana de Recerca i Estudis Avançats  ]]></institution>
<addr-line><![CDATA[Barcelona ]]></addr-line>
<country>España</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>06</month>
<year>2018</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>06</month>
<year>2018</year>
</pub-date>
<volume>38</volume>
<numero>133</numero>
<fpage>45</fpage>
<lpage>73</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_arttext&amp;pid=S0211-57352018000100045&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_abstract&amp;pid=S0211-57352018000100045&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_pdf&amp;pid=S0211-57352018000100045&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen: Poco se sabe sobre cómo las personas que sufren de síndrome de cautiverio o de enclaustramiento (Locked-in Syndrome, LIS) experimentan la situación en la que se encuentran. Todavía no existe una fenomenología del LIS, en el sentido de una descripción de la vivencia de la enfermedad y de la experiencia subjetiva del paciente. Las encuestas sobre calidad de vida y otras investigaciones basadas en cuestionarios suministran datos valiosos. Las mejores fuentes serían los relatos autobiográficos de las personas &#8220;enclaustradas&#8221;, pero no se han estudiado sistemáticamente. Este artículo presenta materiales pertinentes para una fenomenología del LIS y sugiere algunas direcciones para emprenderla como proyecto metódico.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract: Little is known about how individuals with Locked-in Syndrome (LIS) experience their situation. There is still no phenomenology of LIS, in the sense of a description of the locked-in persons&#8217; subjective experience. Research into quality of life, as well as other questionnaire-based investigations, provide important material. Arguably the best sources would be first-person narratives; but they have not yet been studied systematically. This article discusses existing materials relevant to a phenomenology of LIS and suggests some directions for undertaking it methodically.]]></p></abstract>
<kwd-group>
<kwd lng="es"><![CDATA[síndrome de cautiverio]]></kwd>
<kwd lng="es"><![CDATA[locked-in syndrome (LIS)]]></kwd>
<kwd lng="es"><![CDATA[fenomenología]]></kwd>
<kwd lng="es"><![CDATA[narrativas de aflicción]]></kwd>
<kwd lng="es"><![CDATA[esclerosis lateral amiotrófica (ELA)]]></kwd>
<kwd lng="en"><![CDATA[Locked-in Syndrome (LIS)]]></kwd>
<kwd lng="en"><![CDATA[Phenomenology]]></kwd>
<kwd lng="en"><![CDATA[Illness Narratives]]></kwd>
<kwd lng="en"><![CDATA[Amyotrophic Lateral Sclerosis (ALS)]]></kwd>
</kwd-group>
</article-meta>
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