<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1132-1296</journal-id>
<journal-title><![CDATA[Index de Enfermería]]></journal-title>
<abbrev-journal-title><![CDATA[Index Enferm]]></abbrev-journal-title>
<issn>1132-1296</issn>
<publisher>
<publisher-name><![CDATA[Fundación Index]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1132-12962021000100013</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[Comunicación terapéutica en la Esclerosis Lateral Amiotrófica: la enfermera gestora de casos al final de la vida]]></article-title>
<article-title xml:lang="en"><![CDATA[Therapeutic communication in Amyotrophic Lateral Sclerosis: case management at the end of life]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Bermudo Fuenmayor]]></surname>
<given-names><![CDATA[Sara]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Requena Mullor]]></surname>
<given-names><![CDATA[María del Mar]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Serrano Castro]]></surname>
<given-names><![CDATA[Pedro]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Quiroga Subirana]]></surname>
<given-names><![CDATA[Pablo]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[López Palmero]]></surname>
<given-names><![CDATA[Serafín]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Parrón Carreño]]></surname>
<given-names><![CDATA[Tefisón]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Hospital de Poniente de Almería Servicio de Tocoginecología ]]></institution>
<addr-line><![CDATA[Almería ]]></addr-line>
<country>España</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Universidad de Almería  ]]></institution>
<addr-line><![CDATA[Almería ]]></addr-line>
<country>España</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Hospital Universitario Regional de Málaga Servicio de Neurología ]]></institution>
<addr-line><![CDATA[Málaga ]]></addr-line>
<country>España</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Complejo Hospitalario Torrecárdenas de Almería Servicio de Neurología ]]></institution>
<addr-line><![CDATA[Almería ]]></addr-line>
<country>España</country>
</aff>
<aff id="Af5">
<institution><![CDATA[,Complejo Hospitalario Torrecárdenas de Almería Servicio de Medicina Interna ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
</aff>
<aff id="Af6">
<institution><![CDATA[,Delegación Territorial de igualdad  ]]></institution>
<addr-line><![CDATA[Almería ]]></addr-line>
<country>España</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>06</month>
<year>2021</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>06</month>
<year>2021</year>
</pub-date>
<volume>30</volume>
<numero>1-2</numero>
<fpage>55</fpage>
<lpage>58</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_arttext&amp;pid=S1132-12962021000100013&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_abstract&amp;pid=S1132-12962021000100013&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_pdf&amp;pid=S1132-12962021000100013&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen La Esclerosis Lateral Amiotrófica (ELA) es una enfermedad neurodegenerativa caracterizada por una evolución rápida y mortal, produciendo un gran impacto emocional tanto en el paciente, como en su familia. El papel de la enfermera Gestora de Casos en el seguimiento, evaluación y control del paciente y su familia desde el diagnóstico de ELA, y como principal referente experta en cuidados, la posiciona como referente de nexo de unión del equipo multidisciplinar y la unidad familiar. Su papel dentro del equipo interdisciplinar ayuda a mejorar la asistencia que el cuidador familiar proporciona, evitando la sobrecarga del rol de cuidador, aumentando la seguridad del paciente, y por tanto la calidad de vida de ambos, mejorando así también la comunicación e información y la satisfacción familiar. En la práctica, resulta complicado mantener una continuidad de cuidados integrales a lo largo de todo el proceso de la enfermedad, desde el diagnóstico, hasta los últimos días.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease characterized by rapid and fatal evolution, producing a great emotional impact on both the patient and their family. The role of the Nurse Case Manager in the monitoring, evaluation, and control of the patient and their family from the diagnosis of ALS, and as the main expert reference in care, positions her as a point of reference for the union of the multidisciplinary team and the family unit. Their role within the interdisciplinary team helps to improve the assistance that the informal caregiver provides, avoiding the overload of the caregiver role, increasing patient safety, and therefore the quality of life for both, thus also improving communication and information and family satisfaction. In practice, it is difficult to maintain a continuity of comprehensive care throughout the disease process, from diagnosis to the last days.]]></p></abstract>
<kwd-group>
<kwd lng="es"><![CDATA[Enfermería]]></kwd>
<kwd lng="es"><![CDATA[Esclerosis Lateral Amiotrófica]]></kwd>
<kwd lng="es"><![CDATA[Relación Terapéutica]]></kwd>
<kwd lng="es"><![CDATA[Cuidados Paliativos]]></kwd>
<kwd lng="es"><![CDATA[Atención Primaria]]></kwd>
<kwd lng="es"><![CDATA[Comunicación]]></kwd>
<kwd lng="en"><![CDATA[Nursing]]></kwd>
<kwd lng="en"><![CDATA[Amyotrophic Lateral Sclerosis]]></kwd>
<kwd lng="en"><![CDATA[Therapeutic Relationship]]></kwd>
<kwd lng="en"><![CDATA[Palliative Care]]></kwd>
<kwd lng="en"><![CDATA[Primary Care]]></kwd>
<kwd lng="en"><![CDATA[Communication]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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