<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1134-928X</journal-id>
<journal-title><![CDATA[Gerokomos]]></journal-title>
<abbrev-journal-title><![CDATA[Gerokomos]]></abbrev-journal-title>
<issn>1134-928X</issn>
<publisher>
<publisher-name><![CDATA[Sociedad Española de Enfermería Geriátrica y Gerontológica]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1134-928X2023000300003</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[La experiencia de la persona cuidadora no profesional del paciente con enfermedad crónica: un estudio observacional]]></article-title>
<article-title xml:lang="en"><![CDATA[The experience of chronically ill patient&#8217;s non-professional caregivers: an observational study]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Picón-Santamaría]]></surname>
<given-names><![CDATA[Arantxa]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A3"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Ballesteros-Peña]]></surname>
<given-names><![CDATA[Sendoa]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
<xref ref-type="aff" rid="Aaf"/>
<xref ref-type="aff" rid="A a"/>
<xref ref-type="aff" rid="A4"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Biobizkaia Health Research Institute  ]]></institution>
<addr-line><![CDATA[Barakaldo ]]></addr-line>
<country>Spain</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Hospital Santa Marina  ]]></institution>
<addr-line><![CDATA[Bilbao ]]></addr-line>
<country>Spain</country>
</aff>
<aff id="Af3">
<institution><![CDATA[,Universidad del País Vasco/Euskal Herriko Unibertsitatea (UPV/EHU)  ]]></institution>
<addr-line><![CDATA[Vitoria-Gasteiz ]]></addr-line>
<country>Spain</country>
</aff>
<aff id="Af4">
<institution><![CDATA[,Leioa  ]]></institution>
<addr-line><![CDATA[Leioa Bilbao]]></addr-line>
<country>Spain</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>00</month>
<year>2023</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>00</month>
<year>2023</year>
</pub-date>
<volume>34</volume>
<numero>3</numero>
<fpage>164</fpage>
<lpage>167</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_arttext&amp;pid=S1134-928X2023000300003&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_abstract&amp;pid=S1134-928X2023000300003&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_pdf&amp;pid=S1134-928X2023000300003&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen  Objetivos: Evaluar la experiencia de las personas cuidadoras no profesionales de pacientes crónicos.  Metodología:  Estudio descriptivo desarrollado en un hospital de pacientes crónicos pluripatológicos. Se aplicó el cuestionario de evaluación de la experiencia de personas cuidadoras no profesionales del paciente crónico (IEXPAC© 2018-Cuidadores) a cuidadores/as no profesionales de pacientes dados de alta, seleccionados de forma aleatoria.  Resultados: Participaron 90 cuidadores/as no profesionales. La puntuación media (± desviación estándar) global del cuestionario fue de 3,8 (± 1,4) puntos, sobre un máximo de 5. Los ítems con puntuaciones subóptimas fueron los referidos a la ayuda recibida para formarse a través de Internet y los ánimos para hablar con otras personas cuidadoras.  Conclusiones:  La encuesta IEXPAC© 2018-Cuidadores es una herramienta fiable, que permite identificar aspectos de mejora y necesidades percibidas, a partir de las cuales desarrollar acciones concretas y definidas orientadas a mejorar la experiencia de las personas cuidadoras no profesionales de pacientes con enfermedades crónicas.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract  Objectives:  To assess the experience of chronically ill patient&#8217;s non-professional caregivers.  Methodology:  A descriptive study was carried out in a chronically ill patients&#8217; hospital. The questionnaire for evaluating the experience of the non-professional caregiver of the chronic patient (IEXPAC© 2018-Caregivers) was applied to a randomly selected sample of non-professional caregivers of discharged patients.  Results:  90 non-professional caregivers were enrolled. The mean (± standard deviation) overall score of the questionnaire was 3.8 (± 1.4) points, over 5. The items with suboptimal scores were those referring to the help received for training through the Internet and the encouragement to talk to other caregivers.  Conclusion:  The IEXPAC© 2018-Caregivers survey is a reliable tool that allows us to identify areas for improvement and perceived needs from which to develop specific and defined actions aimed at improving the experience of non-professional caregivers of patients with chronic diseases.]]></p></abstract>
<kwd-group>
<kwd lng="es"><![CDATA[Cuidadores]]></kwd>
<kwd lng="es"><![CDATA[calidad]]></kwd>
<kwd lng="es"><![CDATA[acceso y evaluación de la atención de salud]]></kwd>
<kwd lng="es"><![CDATA[calidad de la atención de salud]]></kwd>
<kwd lng="en"><![CDATA[Caregivers]]></kwd>
<kwd lng="en"><![CDATA[health care quality]]></kwd>
<kwd lng="en"><![CDATA[access and evaluation]]></kwd>
<kwd lng="en"><![CDATA[quality of health care]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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