<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1886-5887</journal-id>
<journal-title><![CDATA[Revista de Bioética y Derecho]]></journal-title>
<abbrev-journal-title><![CDATA[Rev. Bioética y Derecho]]></abbrev-journal-title>
<issn>1886-5887</issn>
<publisher>
<publisher-name><![CDATA[Observatori de Bioètica i Dret - Cátedra UNESCO de Bioética]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1886-58872018000100011</article-id>
<title-group>
<article-title xml:lang="en"><![CDATA[The Quality and Veracity of Digital Data on Health: from Electronic Health Records to Big Data]]></article-title>
<article-title xml:lang="es"><![CDATA[La calidad y veracidad de los datos digitales en salud: de la historia clínica a los datos masivos]]></article-title>
<article-title xml:lang="ca"><![CDATA[La qualitat i veracitat de les dades digitals en salut: de la història clínica a les dades massives]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Brighi]]></surname>
<given-names><![CDATA[Raffaella]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Universitá di Bologna Centro Interdepartamental de Investigación en Historia del Derecho, Filosofía y Sociología del Derecho e Informática Jurídica (CIRSFID) ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Italia</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>00</month>
<year>2018</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>00</month>
<year>2018</year>
</pub-date>
<numero>42</numero>
<fpage>163</fpage>
<lpage>179</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_arttext&amp;pid=S1886-58872018000100011&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_abstract&amp;pid=S1886-58872018000100011&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.isciii.es/scielo.php?script=sci_pdf&amp;pid=S1886-58872018000100011&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract The quality of health information online depends on our ability to assess whether it is accurate, whether we are making this assessment as citizens/patients or whether we are using predictive software tools. There is a vast literature on the quality of health data online, and it suggests that the various tools for ensuring such quality are not fully adequate. I propose to address this problem by getting technological, organizational, and legal tools to work synergistically together. Integral to this vision&#8213;across all three elements&#8213;is the training needed for professionals delivering healthcare services as well as for patients using and generating health information online.]]></p></abstract>
<abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen La calidad de la información de salud que podemos encontrar en línea depende de nuestra capacidad para evaluar si ésta es precisa o no, de si estamos haciendo esta evaluación como ciudadanos/pacientes o de si estamos usando herramientas de software de predicción. Existe una amplia gama de literatura sobre la calidad de los datos de salud que podemos encontrar por internet, y ésta sugiere que las diversas herramientas para garantizar una alta calidad de la información no son totalmente adecuadas. Propongo abordar este problema obteniendo herramientas tecnológicas, organizativas y legales para trabajar juntos y generar sinergias. Integrada a esta visión, a través de los tres elementos, es necesaria la formación de los profesionales que prestan servicios de atención médica, así como de los pacientes que usan y generan información de salud en línea.]]></p></abstract>
<abstract abstract-type="short" xml:lang="ca"><p><![CDATA[Resum La qualitat de la informació de salut que podem trobar en línia depèn de la nostra capacitat per avaluar si aquesta és precisa o no, de si estem fent aquesta avaluació com a ciutadans/pacients o de si estem fent servir eines de software de predicció. Existeix una àmplia gama de literatura sobre la qualitat de les dades de salut que podem trobar per internet, i aquesta suggereix que les diverses eines per garantir una alta qualitat de la informació no són totalment adequades. Proposo abordar aquest problema obtenint eines tecnològiques, organitzatives i legals per treballar junts i generar sinèrgies. Integrada a esta visió, a través dels tres elements, és necessària la formació dels professionals que presten serveis d'atenció mèdica, així com dels pacients que fan servir i generen informació de salut en línia.]]></p></abstract>
<kwd-group>
<kwd lng="en"><![CDATA[digital health data]]></kwd>
<kwd lng="en"><![CDATA[big data]]></kwd>
<kwd lng="en"><![CDATA[quality of health data]]></kwd>
<kwd lng="en"><![CDATA[veracity of data]]></kwd>
<kwd lng="en"><![CDATA[provenance]]></kwd>
<kwd lng="en"><![CDATA[XML standard]]></kwd>
<kwd lng="es"><![CDATA[datos digitales de salud]]></kwd>
<kwd lng="es"><![CDATA[big data]]></kwd>
<kwd lng="es"><![CDATA[calidad de los datos de salud]]></kwd>
<kwd lng="es"><![CDATA[veracidad de los datos]]></kwd>
<kwd lng="es"><![CDATA[procedencia]]></kwd>
<kwd lng="es"><![CDATA[XML standard]]></kwd>
<kwd lng="ca"><![CDATA[dades digitals de salut]]></kwd>
<kwd lng="ca"><![CDATA[big data]]></kwd>
<kwd lng="ca"><![CDATA[qualitat de les dades de salut]]></kwd>
<kwd lng="ca"><![CDATA[veracitat de les dades]]></kwd>
<kwd lng="ca"><![CDATA[procedència]]></kwd>
<kwd lng="ca"><![CDATA[XML standard]]></kwd>
</kwd-group>
</article-meta>
</front><back>
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